We got good news this morning from the surgeon who performed the biopsy surgery. My biopsy was negative for lymphoma. They attribute the PET scan results to “reactive” lymph glands which can be the result of an infection.
Possibly the infection came from the virus I had in January. In any event that seems to narrow it to an auto-immune disorder. I still am struggling with the symptoms of numbness in hands and feet, and some loss of activity in legs and some body functions.
I have a follow-up with the Duke hematologist next Tuesday, then my neurologist at the end of April. I appreciate your continuing prayers for whatever the next steps are. During this Easter season an “alleluia” or two is our response to this good news!
After almost 3 weeks in hospitals, we are finally home! We’re thankful to God whose Spirit sustained us, to friends and family whose concern encouraged us, and to skilled doctors and nurses whose training helped us. Thank you again for all the prayers, cards, visits, calls, home repairs, and everything else. We love and thank God for you. Come see us…at home!
I may be going home this afternoon! I have one more plasma pheresis treatment and they want to watch me for awhile after that, but barring any problems we should go home late this afternoon. (Or tomorrow at the latest but I’m counting on today!)
The good news is that there is noticeable improvement. I now have some reflex response in both legs, which I did not have yesterday. I can stand and walk more steadily, too, so hopefully whatever I have is leaving gradually.
I see the surgeon and hematologist next week for follow up and will get biopsy results then. Until then, we are grateful to God for these hopeful signs, and to you for praying for us. See you in Chatham!
The biopsy went well today. The surgeon was able to take three lymph glands from my left groin. Lab results will be available in 2-3 days, so by Thursday or Friday we ought to know something.
Tomorrow I have another plasma pheresis treatment. Physical therapy is also scheduled to work with me. Both physical therapy and the plasma pheresis treatments have enabled me to walk better with a walker.
I keep reminding the doctors that I want to go home on Friday. Until then we’re here at Duke. God’s grace is indeed sufficient and his strength is made perfect in weakness. Thank you for your prayers.
I had a busy day today. The plasma pheresis folks showed up this morning about 9:30 am. The treatment finished about 11:45am, so it took quit a while. However I think the treatments are helping because I am walking better than a few days ago.
While the treatment was going on, the surgeon came in to talk to me. After examining me, he decided to take out a lymph gland in my left groin area. Although this is often done as outpatient surgery, they do put you to sleep. The surgery is scheduled for 2:45 pm on Tuesday, so I would appreciate your prayers then.
I also had a swallowing test. The test consists of swallowing vast amounts of some very nasty barium while they X-ray you from various positions. Apparently I passed, so we can rule out one more thing.
We’re still planning to be home Friday evening, and I will remind the doctors of that tomorrow. We are so grateful for all of you who are praying. Keep it up, especially tomorrow at 2:45 pm. As one of our favorite songs says, “It is well with my (our) soul…”
Not much happened today which is what we expected. I did get another IV bag of calsium because the plasma pheresis treatments strip too much of the calcium from your body.
Debbie pushed me down to the cafeteria and later the in-hospital Starbucks. Before that we had a nice visit from Ben and Betty Davenport. They gave us a great report on worship at our church this morning. Several other friends and my dad called, and we enjoyed hearing from each one.
Tomorrow I am told I will have a swallow test, a surgical biopsy of another lymph node, and my fourth plasma pheresis treatment. We appreciate more than you can know all of the prayers, calls, cards, and visits. We feel your prayers which give us strength each day. Pray for a definite diagnosis and treatment plan this week. We are at peace with whatever comes our way.
When the doctors came around today, I asked them if I could be home by Friday. The head doctor asked, “Why, do you have something you want to do Friday?”
I said, “I’m a pastor and I really want to be at church on Esster.”
Both doctors looked at each other and decided that there was no reason I couldn’t be home by Good Friday, barring any further complications.
So that’s the plan: home in time for
Easter! Keep praying, please.